Michael Joseph (MJ) Skaggs

2009 - 2009
LocationTopeka
Age1 month, 4 days
Cause of DeathGenetic Condition
Date of Birth25/07/2009
Date of Death29/08/2009
Visitors1,519 since 19/10/2009
Creator

After almost a year and a half and two rounds of the fertility medicine chlomid, Willie and I were
absolutely elated when we found out we were expecting. My pregnancy started out just like any other,
with the all day morning sickness and nervousness of a first time mother-to-be. We found out I was
pregnant the beginning of December, and by the beginning of January, I had started spotting. I was
petrified that I was having a miscarriage, and our doctor wanted us to come in and do an ultrasound
to see what was going on.

We got the surprise of our life when we found out that not only were we having one baby, but there
were two tiny babies growing in my belly! Willie and I were in shock, and could hardly speak we were
so surprised. We spent the next few weeks overjoyed and eagerly anticipated when we would find out
what we were having. When I was 17 weeks pregnant, we had an ultrasound and both of our babies
'showed us the good's'. We were having two boys! And the doctor was pretty sure we were having
identical twins! Two baby boys, we could just not be happier!

Four weeks later, we went in for another routine ultrasound. We got another shock that day, but not
a good one. One of our babies looked to have a condition called CDH, or congenital diaphragmatic
hernia, but they weren't sure, so we would have to go to a specialist to confirm the diagnosis. Two
weeks later we were devastated when we were told that yes in deed Baby Boy B would have CDH. At this
point we had decided to name our boys William Glen Skaggs IV and Michael Joseph Skaggs. We decided
that our baby with CDH would be called Michael Joseph and we would call him MJ for short. At the
time we had no clue what we would be in store for once our twins were born.

After numerous doctor appointments and specialists and ultrasounds and MRI's and everything else
that needs to be done for a CDH baby in utero, all We could do was wait. I developed preclampsia at
34 weeks and was admitted into the hospital. I was put on bedrest with the goal of making it to 37
weeks, and my boys would induced. Well, two weeks later, at 36 weeks my water broke and I was in
labor! I was overjoyed to finally see my boys! After 26 hours of labor and two hours of pushing, I
was no where near being able to push the boys out. So I had a c-section, and William Glen was born
at 3:26 am and Michael Joseph was born at 3:27 am on July 25, 2009.

After my c-section I was unable to see MJ until 10 pm that evening. My son couldn't have looked more
beautiful. However, he was very sick and we were very scared for him. After two days at the
University of Kansas Medical Center, he was not showing any signs of improvement. Children's Mercy
Hospital has a machine called ECMO, which is a heart and lung bypass. Since KU did not have this
machine, and Children's did, MJ needed to be transferred to Children's. Watching him move was the
scariest day of my life at that point.

The next day I was released from KU along with MJ's twin, Will. We rushed straight over to
Children's and saw MJ. He looked much better at Children's and we got to bring Will in to see him
everyday, which was a life saver. It broke my heart thinking that my boys would be seperated, but
Children's made exceptions for twins and Will was allowed in to see MJ everyday.

When MJ was six days old, he was placed on the ECMO machine. He was very ill and was unable to get
off the ECMO machine and had his repair surgery on ECMO. After his surgery, MJ had a very rough few
days. We thought we were going to lose him. But MJ pulled through and started to get better. When he
was 31 days old, after 25 days on ECMO, MJ was strong enough to come off of the machine. Again, he
had a rough few days, but on my birthday, August 28, he started to make a turn and really do well.
At 4 pm that day, something happened and the doctors still don't know what.

We didn't leave the hospital that day and stayed by his side overnight. The next morning he was
doing worse, if he even could have. Throughout the day the doctors did everything in their power to
keep MJ alive. But then there was nothing else left to do. We made the choice to hold our son and
let him know that we loved him in his final moments. The first time we held our son was the last.
But we had three amazing hours holding MJ and Will together. August 29, 2009 was the first time our
family of four was together and we had to say good bye. MJ is gone, but he will never be forgotten.
Thirty five days was not nearly enough, but he will remain in our hearts forever.


Recent Gifts

Recent Tributes


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Sending lote of hugs and kisses

Tiny Angels
Tiny Angels rest your wings
sit with me for awhile.
How I long to hold your hand,
And see your tender smile.
Tiny Angel, look at me,
I want this image clear....
That I will forget your precious face
Is my biggest fear.
Tiny Angel can you tell me,
Why you have gone away?
You weren't here for very long....
Why is it, you couldn't stay?
Tiny Angel shook his head,
"These things I do not know....
But I do know that you love me,
And that I love you so".

Author Unknown

♥♥ AN ANGEL FOR AN ANGEL ♥♥

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♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥

Sian Milligan (Friend) October 24, 2009

♥.*.♥.*.~THINKING OF YOU~.*.♥.*.♥

If I could be an Angel,
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
I know just what I'd do.
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
I would guard someone special,
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
Someone just like you.
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
I'd be the friend you need,
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
Anytime day or night.
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
When you need someone to lead,
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
I'd guide you with my light.
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
And if you began to stumble,
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
I'd reach out my hand to you.
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
I'd help with all your trouble,
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
And take away your sorrow too.
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
But since I'm not an Angel,
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
By your side I'll stand.
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
And if you begin to stumble,
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
I'll reach out my hand.
(UNKNOWN)
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.


Sweet Dreams MJ Look after your brother for your mammy and daddy and help him grow nice and big

Sian Milligan (Friend) October 20, 2009

..SWEET DREAMS..


•:*:• •:*:• •:*:• •:*:• •:*:••:*:• •:*:• •:*:• •:*:• •:*:••:*:• •:*:• •:*:•


_$$$$$$________*GOODNIGHT*__________$$$$$
__$$$$$$$$*______*ANGEL*________,,$$$$$$$$*
___$$$$$$$$$$,,_______________, ,$$$$$$$$$$*
____$$$$$$$$$$$$__ ._____.___$$$$$$$$$$$$
____$$$$$$$$$$$$$,_'.____.'_,,$$$$ $$$$$$$$$
____$$$$$$$$$$$$$$,, '.__,'_$$$$$$$$$$$$$$$
____$$$$$$$$$$$$$$$$.@:.$$$$$$$$$$ $$$$$$
______***$$$$$$$$$$$@@$$$$$$$$$$$****
__________,,, __*$$$$$$@.$$$$$$,,,,,,
_____,,$$$$$$$$$$$$$* @ *$$$$$$$$$$$$,,,
____*$$$$$$$$$$$$$*_@@_*$$$$$$$$$$$$$
___ ,,*$$$$$$$$$$$$$__.@.__*$$$$$$$$$$$$$,,
_,,*___*$$$$$$$$$$$ ___*___*$$$$$$$$$$*__ *',,
*____,,*$$$$$$$$$$_________$$$$$$$$$$*,,____*
______ ,;$*$,$$**'____________**'$$***,,
____,;'*___'_.*_*SWEET DREAMS*_________*___ '*,,
,,,,.;*__________________________ _ ____ '**,,,,


•:*:• •:*:• •:*:• •:*:• •:*:••:*:• •:*:• •:*:• •:*:• •:*:••:*:• •:*:• •:*:•
☆SLEEP TIGHT ☆ ANGEL ☆ KEEP SHINING BRIGHT ☆
•:*:• •:*:• •:*:• •:*:• •:*:••:*:• •:*:• •:*:• •:*:• •:*:••:*:• •:*:• •

LOVE TRACY XX

Tracy Raine October 20, 2009

Little Brother - by Christie Wildman

For William X

You have this little Brother,
He loves you very much,
But you’ll never get to see him,
Or feel his gentle touch.

He had to go away you see,
Through God’s garden gates.
Though he longs to meet you,
Heaven’s where he waits.

You have this little Brother,
He’s sending you his love,
Although he longs to be with you,
He watches from above.

He grew his Angel wings you see,
Though none of us were ready,
On one of heavens clouds he sleeps,
Cuddling his teddy.

You have this little Brother,
He’d love to come and play.
But for all eternity,
In the sky is where he’ll stay.

God had a plan you see,
He needs him by his side,
He’s shown him how to use his wings,
Through heavens clouds he glides.

You have this little Brother,
And though you are apart,
The love that you feel for him,
Will remain ever in your heart.

Joanne Mitchell October 20, 2009

God Bless you Michael xx Watch over your mummy daddy & brother & keep them safe thinking of them at this very sad time xx Sweet Dreams Little man have fun in heavens garden until you are reunited once more xx

Maxine Arden-Carter October 20, 2009

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♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥

Janet Maguire October 20, 2009

my thoughts and prayers are with you and your family .

Samantha October 20, 2009

My thoughts and prayers are with you, I am sorry to hear of your loss

Tanya Cranford October 20, 2009

sleep tight...xxxx

my thoughts and prayers r with you and ur family at this very sad time....
sleep tight angel hope you hav fun with all d other baby angels in d sky...xxxxx

Gina Lane October 19, 2009

My prayers are with your family. In heaven you are well & happy. Watch over your family for I know they miss you dearly.

Anita Johnson October 19, 2009
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